P
Name  PANS (Paediatric Acute-onset Neuropsychiatric Syndrome)
Related to/Also known as 
  • PANDAS (Paediatric Autoimmune Neuropyschiatratric Disorders with Streptococcal Infections)
  • Sydenham Chorea, Sydenham's Chorea
  • OCD, ADHD
Symptoms of PANS and PANDAS

"PANS is a neuropsychiatric condition which is triggered by a misdirected immune response which results in an inflammation of a child's brain."

Source: PANS PANDAS UK www.panspandasuk.org/pans-pandas

"PANDAS is a subset of PANS.  Similarly, it is a neuropsychiatric condition which is triggered by a misdirected immune response to a Streptococcal infection which results in an inflammation of a child's brain.

"Usually starting with an acute onset of obsessive compulsive disorder and/or tics, particularly multiple, complex or unusual tics."

Source: PANS PANDAS UK www.panspandasuk.org/pans-pandas

"Sydenham chorea is a movement disorder occurring in conjunction with rheumatic fever, an inflammatory condition that may develop in children after an infection with Streptococcus A bacteria.

"Chorea describes a disorder of constant, abrupt, involuntary movements and this is a common symptom. Muscle weakness is present in all affected individuals with varying severity. Difficulties with eye movements, voice, and hand movements also occur. Swings in mood and other disturbances of feelings have been described. Children may develop features of obsessive compulsive disorder (OCD) or attention deficit hyperactivity disorder (ADHD), although the full disorder (known as Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections or PANDAS), might not develop."

Source: Contact, charity for families with disabled children https://contact.org.uk/advice-and-support/health-medical-information/conditions/s/sydenham-chorea/?page=5&f=S

Useful national contacts

PANS PANDAS UK
Link opens in new window www.panspandasuk.org
Link opens in new windowwww.facebook.com/panspandasuk
Link opens in new windowwww.instagram.com/pans_pandas_uk
Email This email address is being protected from spambots. You need JavaScript enabled to view it.

Contact, charity for families with disabled children
free helpline 0808 808 3555
Link opens in new window https://contact.org.uk

Online resources

 The Brain Changer Arts Project (The Brain Charity)

Pediatric acute-onset neuropsychiatric syndrome (U.S. Genetic and Rare Diseases Information Center)
Link opens in new window https://rarediseases.info.nih.gov/diseases/13087/pediatric-acute-onset-neuropsychiatric-syndrome

Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) Care (Stanford Hospital, U.S.)
Link opens in new window https://med.stanford.edu/pans.html

PANDAS - Questions and answers (U.S. National Institute for Mental Health)
Link opens in new window https://www.nimh.nih.gov/health/publications/pandas/index.shtml

Pediatric autoimmune neuropsychiatric disorders associated with Streptococcus infections (U.S. Genetic and Rare Diseases Information Center)
Link opens in new window https://rarediseases.info.nih.gov/diseases/7312/pediatric-autoimmune-neuropsychiatric-disorders-associated-with-streptococcus-infections

Sydenham Chorea (U.S. National Organization for Rare Disorders)
Link opens in new window https://rarediseases.org/rare-diseases/sydenham-chorea/

Sydenham Chorea (Contact, charity for families with disabled children)
Link opens in new window https://contact.org.uk/advice-and-support/health-medical-information/conditions/s/sydenham-chorea/

News and events

"These children were told they have autism and mental health problems but the cause was a bug – and ‘thousands’ like them are being misdiagnosed" (iNews, September 2018)
Link opens in new window https://inews.co.uk/inews-lifestyle/people/autism-adhd-mental-health-problems-bug-thousands-misdiagnosed-pandas-199848

Our resources

The library at the Brain Charity has a range of resources on  a wide range of disability related issues.