Name Epilepsy
Related to/Also known as  
Symptoms of Epilepsy Epilepsy is the tendency to have recurrent seizures, which tend to recur spontaneously. These seizures occur when there is an electrical disturbance in the brain, and the signals it sends to the body become mixed up, rather like an electrical storm in the brain.

There are many different types of seizure, usually divided into two categories - generalised or partial. Typically a seizure may last from a few seconds to a few minutes.

Partial seizure - affects only part of the brain. Consciousness is not lost in a simple partial seizure; consciousness is impaired in a complex partial seizure.

Generalised seizures affect the whole brain, and often involve a loss of consciousness. They include the Tonic Clonic seizure where the person falls down, and their body stiffens and shakes; the Atonic seizure where the body goes floppy rather than stiff; the Absence seizure, which usually shows itself in a blank stare lasting a few seconds; the Myoclonic seizure, which is very brief and involves a muscle jerk.

Useful national contacts

Epilepsy Action
Helpline: 0808 800 5050
Link opens in new window www.epilepsy.org.uk
Find local branches and groups:
Link opens in new window www.epilepsy.org.uk/involved/branches
Link opens in new window Virtual groups now meet every week for a chat

Epilepsy Society
Helpline: 01494 601400
Link opens in new window www.epilepsysociety.org.uk
David Lewis Centre For Epilepsy
Tel. 01565 640000
Link opens in new window www.davidlewis.org.uk
Seizure Alert Dogs
Link opens in new window https://tinyurl.com/ybdbt

Mersey Regional Epilepsy Association
Helpline 0151 298 2666
Link opens in new window www.epilepsymersey.org.uk

SUDEP Action (Sudden Unexpected Death in Epilepsy)
Link opens in new window http://sudep.org
Tel. 01235 772850

Children & young people

Young EpilepsyInformation about COVID-19 (coronavirus) for young people with epilepsy.(Young Epilepsy)
Link opens in new windowwww.youngepilepsy.org.uk/covid-19-information.html

Young Epilepsy
Provides information and support for young people, and for parents and carers
Helpline: 01342 831 342
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Link opens in new window www.youngepilepsy.org.uk

Epilepsy Action: Just for kids
Epilepsy info for kids
Link opens in new window www.epilepsy.org.uk/info/children

The Daisy Garland - charity offering help and support for children wirh drug-resistant epilepsy
Link opens in new window www.thedaisygarland.org.uk

Online resources

Coronavirus (COVID-19) and epilepsy (Epilepsy Action)
Link opens in new window www.epilepsy.org.uk/info/daily-life/safety/coronavirus-covid-19

Wearing a face mask with epilepsy (Epilepsy Society)
Link opens in new window www.epilepsysociety.org.uk/news/wearing-face-mask-epilepsy

Guide to Epilepsy and PIP (The Brain Charity)
Guide to Epilepsy and PIP

What to do when someone has a seizure (Epilepsy Action)
Link opens in new window https://tinyurl.com/y9ky4up2

6 absence seizures caught on camera, on YouTube
Link opens in new window www.youtube.com/watch?v=PQfVUOBjttk&feature=youtu.be

First Aid for seizures - Epilepsy Action video (YouTube)

EpSMon - award-winning self-monitoring App designed for adults who experience seizure
Link opens in new window www.epsmon.com

Free e-learning resources from Epilepsy Action
Link opens in new window http://learn.epilepsy.org.uk

You may be entitled to free or discounted travel if your seizures mean you can’t have a driving licence (Epilepsy Society)
Link opens in new window https://tinyurl.com/ycl743wc

EasyRead: Epilepsy (EasyHealth)

Link opens in new windowwww.easyhealth.org.uk/index.php/12-common-health-conditions/epilepsy


 Living with a condition (The Brain Charity)

News and events

People with epilepsy included in priority group 6 for Covid vaccine (Epilepsy Society, February 2021)

Nikkita Otu has severe epilepsy. Sign the petition to help Nikkita get the care he needs (2019)
Link opens in new window www.change.org/p/merton-borough-council-help-me-get-the-social-care-i-need-to-live

"Husband programmes smartwatch to detect wife's seizures" (Epilepsy Society, January 2016)
Link opens in new window https://tinyurl.com/ycfd8f2q

Our resources What's up with Wendy? MediKidz explain epilepsy

The library at The Brain Charity has a range of resources on Epilepsy and on a wide range of disability-related issues.

Visit our library to read What's up with Wendy? MediKidz explain epilepsy.